Genetics of Deafness

Taylor has Connexin 26.  This means that Jon and I are recessive carriers of Connexin 26.  What is Connexin 26?

Connexin 26 (Cx26) is a protein found on the (GJB2) gene and is the most common cause of congenital sensorineural hearing loss. Connexin 26 mutations are responsible for at least 20% of all genetic hearing loss and 10% of all childhood hearing loss. In some ethnic populations, more than 80 percent of cases of nonsyndromic recessive deafness result from a mutated Connexin 26 gene. Children born with bilateral (both ears) severe to profound sensorineural hearing losses are typically referred for genetic testing for Connexin 26 mutations.

Connexin 26 mutations are genetically transmitted from parent to child in a recessive manner, which means that an affected individual must inherit one copy of the non-functioning gene from each parent. Carriers who only have one copy of the gene (i.e. one normal gene and one mutated gene) do not manifest any of the signs of the condition, but have a 1 in 2 chance of passing on the defective gene to their children (who would then also be carriers only), and a 1 in 4 chance of having an affected child if the other parent is also a carrier. This explains how Derek can hear perfectly, as Jon and I do.

Connexin 26 mutations are non-syndromic, meaning that the mutation produces only isolated hearing loss. There is NO increased risk for other medical problems that are commonly associated with hearing loss such as blindness, thyroid problems, kidney problems, or balance disorders. However, there is in a minority of cases a higher incidence of skin disorders in patients with a Connexin 26 mutation.

This is the Best Part of knowing it's Connexin 26!  No associated issues with the deafness!


Connexin 26 mutations produce a pre-lingual hearing loss, because it affects the child before they are old enough to develop speech.

Why do we need Connexin 26 to hear?

The GJB2 gene contains the instructions for manufacturing a number of proteins, including Connexin 26. Connexin proteins in general are called “gap-junction proteins” which are necessary for cells to communicate with each other. Without sufficient levels of Connexin 26, the potassium flow from hair cells in the cochlea is disrupted, resulting in extremely high levels of potassium in the Corti s organ, leading to the profound sensorineural hearing loss. Connexin 26 mutations occur primarily in Caucasians, Ashkenazi Jews, and some Asian populations.

This seems like old news, since we found out about this with Taylor within a month or so of finding out she was deaf.  Now, we have another baby on the way and the worry starts anew in that this time we know there's a 25% chance.  Thankfully, we know what to do and how to find out this time...


I pulled this information from the California Ear Institute website.  Harvard's Genetics of Deafness center has a great pamphlet of information that we found to be helpful when we confirmed the Connexin 26.
http://hearing.harvard.edu/info/GeneticDeafnessBookletV2.pdf

2010 in Review

What a difference a year makes!  

Last December, Taylor had been hearing only 3 months and her main word at that point was "Mama."

This December, I find it hard to list a word that she couldn't say.  Some of her accomplishments over the past year include:

• Can verbally identify the names of the basic colors and shapes 
• Can name most common animals and knows the sounds they make
• Knows the names of our family members and friends
• Asks questions, such as "What are you doing?" " Where did Daddy go?" "Where is my Jacket?"  
• Requests items such as Barbie Movie, Hot dog, Purple Tutu and Cookies.
• Uses adjectives regularly in her speech (empty pocket, scary movie, mean car, funny Daddy)
• Tries to count on her own from 1 - 10 (the order is unpredictable at this point)
• Will say "I'm sorry, Are you okay?"
• Learned the language of rural Kansas, i.e. Combines, Tractors, Cows, Horses, Boots, etc. 
• Developed an appreciation for music, including lots of singing and dancing.

The list goes on and on. Here are a few recent videos of Taylor.

Our Little Dancer (October 2010)

Repeating (and Anticipating) Ling Sounds in Therapy (October 2010)

As I reflect on the past year, I am thankful for the therapy and services that we have received from Hearts for Hearing in Oklahoma City and Via Christi in Wichita.  I am thankful for flexible work schedules for both my husband and I that have allowed us to get Taylor to weekly appointments for the past year.  I have greatly appreciated my husband's parents and sisters, who have helped us with babysitting, meals, and a place to stay during our trips to Oklahoma City.  The Blog Comments along the way have been a welcome surprise!  I'm so glad that Derek has been a good sport in this past year, helping Taylor to learn new words, helping to keep track of the "ears" when they fall off, and celebrating with us by announcing "Mom, Taylor Said XXX!"  I'm grateful to have a husband (10 Years Today!) who was willing to sacrifice, work and worry along with me.  And most of all, I'm thankful for Taylor, whose wonderful enthusiasm and attitude have allowed her to excel with language in spite of the challenge of deafness.

Taylor is a Tough One! Subtitle: Don't Mess with My Brother

Ahhhh, immunizations.  Is there anything less enjoyable for a parent?  For both kids, I've taken them to the vast majority of their immunizations.  Dad's turn!  This past week, Jon had an afternoon open and decided to take the kids in for their flu shots.  Derek also needed another immunization, for a total of two shots. 

Jon takes the kids in together to the shot room.  Three nurses come in.  Two have syringes; the other is there to help hold Derek.   Jon and that nurse are holding Derek down, with him screaming his little head off.  Right as the other nurses try to give Derek his shots, Taylor decides to take action.  She screams "NOOOOO" and rips one of the syringes out of his leg.  Derek got a 3-inch scratch on his leg and we're not entirely sure if he got the flu shot as intended.  Jon had to go after Taylor and attempt to confiscate the syringe and needle, which she somehow bent and did not want to relinquish.  Needless to say, Taylor had to get her own flu shot after that and I'm sure she didn't go quietly.  Derek was too busy nursing his own wounds to attempt to rescue her.  Dad was a little frazzled when he called me to tell me the story. 

Aren't siblings the best?  I love that Taylor is protective of Derek.  Don't worry, Derek - your little sister will defend you.  I have 3 sisters, and I remember more than a few times that I took on a battle on their behalf.  We hope someday that Derek will have it in him to help out when the other kids notice Taylor's "ears"... although I'm quite sure that she'll be taking care of herself.  My little two-year-old tried to take on 4 adults to defend her brother.  What a story! 

Mom's Turn - Traveblog

Well, I've taken quite a vacation from this...  Life has been crazy for us lately, and though I've had many blog ideas in the past month, I haven't been able to get them posted.  I have been traveling extensively for work, the only upside from that being that I've accumulated mileage status on Delta such that I'm getting free upgrades.  Sweet!  Warm towel?  Yes, please...  Would you like something to drink? Yes, please...  Another bag of peanuts?  Sure.

Last April (2009), we began having issues with a particular customer in Miami, Florida.  Since then, my business travel has really picked up.  Here is a list of the travel that I've had since April 2009.  A few of these are personal; most of them are business... and interspersed with these trips are the weekly trips to Oklahoma City for Taylor's therapy. 

Miami
Atlanta
Columbia, SC
Cary, NC
Miami
Phoenix
Orlando
Miami
Las Vegas
Branson
Miami
Denver
Orlando
Miami
Cary, NC
Jacksonville, FL
Kansas City
Atlanta
Birmingham, AL
Chicago
Sacramento, San Francisco, Napa, Carmel
Branson
Tampa
Atlanta
Dallas
Jacksonville
Chicago
Milwaukee
Las Vegas
Milwaukee
Atlanta
Branson
Miami (4 times in 5 weeks)
Canon City & Breckenridge
And this week, I am headed to Detroit. 

Good thing I broke down and ordered a Samsonite Spinner.  I have calluses on my hands from dragging my suitcase and laptop bag through the airport. 

Lumps around the CI

Last Thursday, I took Taylor back to the Hough Ear Institute.  We always try to watch the implant area closely for redness or irritation.  Occasionally, infections can occur.  Taylor's dad noticed when putting on the coil that there was a lump right below the CI on her head.  It felt like a cyst.  We were able to get right in with our surgeon and had him take a look.  He found two lumps, and started asking me about bug bites, etc. because he thought it was swollen lymph nodes associated with a skin irritation.  I remembered that while we were on vacation, my mom had put Taylor's hair in pigtails and we found a little seed tick on the back on her head near that area.  It was from that tick!!  I hate ticks but what a celebration to know that all is well with the cochlear implant.  :)

One Year Earniversary and Conversations with Taylor

We recently passed the one-year mark since Taylor's bilateral CI activation.  What a year it was!  We made at least 40 trips to Oklahoma City for therapy and mapping appointments.  That would be about 320 hours in the car and 19,000 miles on the road.  I can pour chocolate milk in a sippy cup and hand out snacks while driving on the Interstate...  and I can really extend an arm to save the CI's from being dismantled when boredom takes over.  I think I've put off writing this blog because the one year anniversary of CI's requires a special note and brings back a lot of emotion from that time one year ago when I wrote "Just as You Are...", hoping for so much, but content with my wonderful little deaf girl as well.  

Taylor's expressive language is exploding right now, as Derek's did after his second birthday.  She is getting pronouns - will look at a picture of herself and say "me."  She will hold the camera and say "cheese!"  I can get her to "parrot" me. For example, when reading an alphabet book recently, I would say a letter and she would attempt to repeat it before I went on to read the dialogue associated with that letter.  She can point out almost all colors when we name them, and can say most of them herself.  A recent shopping trip went like this -- "Look! Yellow!  Blue, Green, Red, White."  She identified the colors to me as she found them.  She will ask for a bath before bedtime and a hot dog if she is hungry (her favorite food).  She is also into counting still, and now she makes it to about six.

We can have conversations, which is really fun.  On Saturday, I asked her if she wanted to watch a movie. She said "Tutu movie" --translation - her ballerina movie.  I looked in the cabinet and it wasn't there so I asked her where it was.  She said, "Right here, Come on" and then walked into my bedroom to show me it.

  Here are some recent vacation pictures.

Swimmers!

Helping Daddy Drive the Boat

A good place for a nap

I love to Swing!

Derek Loves to Swing too!

Check out my Barbie fishing pole.

Confidence!

What's it mean to be a good Mom?  Or a good Dad?  What determines "Success"?  One of my most important parenting goals is to raise children who can go out into the world with confidence.

I had a great teacher of confidence and self-esteem - my Mom.  From my earliest memories, I remember that if I ever expressed any self-doubt, my Mom would reassure me and not let me put myself down.  As we drove down the road when I was 3 or so, I was reading the Speed Limit signs, Stop signs, etc.  My mom said something about me "reading".  I said "I can't read!"  She said, "Yes, you can!  You're reading the signs right now!" And I realized, sure enough, Mom was right.  That was the beginning of how my Mom taught me to have confidence.  From water-skiing at age seven, to entering spelling bees and track meets, taking gymnastics, and playing softball, any time I thought I couldn't do it, wasn't good enough, or that someone else was better, my mom would let me know that I could do anything I wanted to.  Somewhere along the way, it worked.  My sisters and I are all doing pretty well now.  Thanks MOM!

Taylor swimming at Papa and Grandma's House

As a parent, any time your child faces a challenge, you have a choice to make...
do you coddle them in case they fail and get hurt?  or do you encourage them and let them know that you have confidence in them to be successful?

Derek swimming at Papa and Grandma's house

In early life, these are usually physical challenges...  the first steps, first climbs, sitting in a big chair rather than the high chair, going down stairs, riding a tricycle, swimming, riding a bicycle with training wheels, doing a somersault.  Every single one of these is an opportunity to instill confidence in your child.  Mastering physical challenges in early childhood helps a child gain self-esteem that will translate across all of life's greater challenges.

Derek on the trampoline

Taylor at swimming lessons, June 2010

Derek hanging out on Papa's Ranger

Derek & Taylor in the airplane to Taylor's therapy appt

Taylor doing the Trampoline Bungee at A Grape Event, Hearts for Hearing fundraiser at Plymouth Valley Cellars

Little Miss Manners

Taylor's surgery was one year ago this week.  That was the scariest, most exciting day in my life.  If it's possible to feel a mix of accomplishment, dread, worry, elation, agony, and anticipation, all rolled up into one big ball of nerves, that was surgery day for me.  Taylor's Dad, on the other hand, was pretty calm, all things considered.  He does surgery for his profession, so it wasn't as intimidating for him as it was for me.

Some friends of ours have a surgery day coming up soon for their little guy.  They came to visit us recently and we tried to prepare them and reassure them of the good things in store for them and their son.  Thinking of how far we have come in this past year brings tears of joy to my eyes.  Sharing Taylor's successes with another family was so wonderful.  If we helped them in any way worry less, hurt less, or know that their son will have an amazing life, then we are thrilled to be able to do that.


These are some of Taylor's recent accomplishments:

Burp, saying "excuse me"  (She must have gotten that from her father.)

Sneeze, babysitter says "bless you", Taylor replies "thank you!"

At a drive-in restaurant, a guy walks by and she says "Who's that?"  followed by "Where's my Hot Dog?"

She is doing lots of requesting, mainly around food.  "Hot dog, apple juice, candy, drink"

Last night, she smelled my glass of wine and said "Mommy juice."  Exactly right and stay away, please!

There are also many questions.  "Where'd Daddy go?"  "Where's Derek"  "What's that?"

I'm waiting for the "Why"'s to begin.  No hurry there.  We're in a stage of "MINE"!  If Derek or any other child touches Taylor's food, toys, chair, shoes, etc. (on down the list), there are a flurry of MINE's that come out of her mouth.  Pretty typical of a 2-year old.

I have to admit that we as parents have been a little softer on Taylor than we were on Derek for that kind of behavior.  Let's face it... if she didn't hear until she was 15 months, we had to give her some catch-up time before we felt like she understood at her appropriate age level what we were saying.  Then, we went through a period of feeling glad she could say anything, even if it was "No" and "Mine" over and over again.   Now, Taylor Kay, I have to warn you -- Mommy and Daddy know you know what we're saying and and we are going to be tough critics from now on!!   Love, Your MOM and DAD (not softies)

Taylor's Tribute Video 2nd Bday

Summer Fun

Summer has been a busy time at our house! It is just flying by.

We got the rechargeable battery packs for Taylor’s Nucleus 5 processors. They are the exact same size as the regular battery packs, so – good news – all of the decorative covers and headbands still fit with them. Saturday was the best day! We got to let Taylor go swimming/splashing in a small pool for hours and hours with our neighbor’s grandkids, with her ears on! No problem, no (well, minimal) worries. With the new rechargeable batteries, they are approved to be water-submersible. At this point, Taylor doesn’t go under water. She runs and splashes around in the pool. Being able to have her “ears” on puts us both more at ease.

We did swimming lessons the week before the 4th of July. Both Derek and Taylor did really well. Derek, at 3.5 years, is swimming around really well with his life jacket on. Taylor, at just over 2, is really brave and will jump off the diving board or into the pool from the side. She has a harder time controlling her swimming movements with only the life jacket on if no one is holding the jacket. But the best part is, they both love swimming and playing in the water.

We went to see my parents for the 4th of July. I have 3 sisters and they were all there with their husbands, kids and Yorkies… we are a Yorkie family. One of my sisters just got a new puppy. Her name is Kona and she is adorable.

Taylor knew she was a “baby” puppy and went easy on her thankfully. Maverick, our Yorkie, usually is getting carted around and chased. He gets away from her more easily than Mikea, our cat. Mikea will amazingly put up with quite a bit of handling from Taylor and Derek.

Taylor keeps adding words, including tractor (followed by Yeah!) and more food words, more often.  i.e.Cookie, Candy, Hot Dog, etc. She is a real eater and gets pretty excited about her meals and snacks.  She also knows her manners and that if she really wants something from Mommy, "Ppppleaase." She's got that one down! 
Taylor has had so many new cool experiences this summer.  She spent the weekend at Papa's farm and got to help feed the cows.  She has ridden in a tractor and a combine.  Loved that.  She has gone to Tanganika wildlife park near Wichita, where she fed lemurs and climbed to (I'm told) the tallest slide ever.  I'm hoping to add some pictures of that soon.  Our family is pretty active and outdoorsy in general, and we seem to never be indoors during the summer.  But when we are, Taylor has mastered riding her tricycle.  It is so cute.  Of course, as with all of her toys, they are old news for big brother Derek until she likes them... then he wants to fight to get them back.  However, with all of this outdoor fun, maybe we should be reading more with Taylor...  but I know that all of the outdoor experiences -- watering flowers/spraying our dog Maverick, ant-stomping, flower picking -- create learning opportunities as well.  As always, we are thankful to have Derek as her big brother and role model.  We hope that she continues to learn from him, just not every little thing he does.  You'll see what I mean....

Rechargeables! Yahoo!

So, big news!  I found out that the Nucleus 5 rechargeable battery packs have been approved by the FDA...  last week.  They are approved to be water-submersible.  Cochlear should start sending them out soon!  Just in time for swimming season --- nah, probably not, but one can hope. 

Speaking of swimming, Taylor is becoming more of a swimmer.  She is in swimming lessons this week.  She really likes playing in the water, but it is going to be a challenge to help her learn how to swim until she can wear her ears in the water.  She is sooooo observant though - she already does a pretty good job of moving herself around wearing her infant life jacket.  Last weekend, we swam all weekend in the grandparents' pool.  She got a lot of practice.

Taylor had her 4th mapping appointment last Thursday.  It went really well.  The audiologist was able to map 7 electrodes on the right side and 5 electrodes on the left, interpolating to the other electrodes (there are 22 on each side.)  After her mapping, we went in the soundbooth.  Taylor was able to respond to sounds at 10 dB.  A normal hearing person begins to hear sound between 0 and 20 dB.  From a noise level perspective, she can hear very quiet sounds. 

Taylor's latest skill is counting -- sometimes we say "one, two" and she adds the "three." Sometimes she says "one, two, three" with us. When we ask her how old she is, sometimes she says "two" while holding up four fingers. Other times, she says "three!" She just likes saying Three. Usually it's followed by a jump or somersault. One, two, three - Jump! One, two, three - somersault! There's always a lot of physical activity happening in our house.

We have been doing Y week for the last couple of weeks. 
http://www.cochlearamericas.com/PDFs/Speech_Sounds_Y_Semivowel.pdf

I find it interesting that y and qu sounds are both included in the Y week.  Some good ones:  Yum-yum, Vacuum, Tortilla, Quesadilla.  Currently, hot dogs are out of favor and quesadillas are Taylor's current fave.  She even tries to say it.  I'd say she gets the number of syllables right, but that's it. 

She has started saying more words, including Me, Mine, Tay (as she points at herself). One, Two, Three. 
Cookie, Pizza, a lot of these she has been saying for a while.  There is more and more every day.

At every therapy appointment, the therapist goes through the Ling sounds and asks Taylor to let us know if she heard them.  Aa, ee, oo, mm, ss, and sh.
http://www.advancedbionics.com/UserFiles/File/Ling_Six_Sound_Check-6.pdf 
Taylor has started imitating the sounds back to the therapist.  She even covers her mouth to the hide the lip position and movement.  It is too cute!

W Week and what? So many words...

 We did "W' week for the past two weeks.  It has been fun! 

http://hope.cochlearamericas.com/sites/default/files/Speech_Sounds_W_Semivowel.pdf

Wow!  is a favorite word of Taylor's. 

Some of her new words and phrases are:
Where are you?
Right there. 
Sheena
Come here.
Choo choo train
Love you
What's that?
Candy
Cereal

Did you notice that?  She's adding more verbs!  Yeah! 

We had her second birthday party this past weekend.  It was a wonderful time.  She got a Barbie bike with training wheels, dancing tutu's and outfits, a Bitty Baby American Girl doll, and several other outfits and toys. 

Although she really loves her Bitty Baby, you will see from the following pictures that this birthday was all about Frosting!  I made carrot cake cupcakes with cream cheese frosting.  Taylor tried to eat the frosting off of as many cupcakes as she could get her fingers into.  I also made the famous family chocolate birthday cake, but mixed it up a little bit with a ganache topping.  It was lovely, but entirely too much effort for her when frosting was clearly her favorite.  Next year, it's a can of Betty Crocker cream cheese frosting for Taylor...  the guests will have to fend for themselves!  Or maybe I should admit now that I am a chocolate lover and the chocolate might have been mainly for myself.  :)

Yesterday was the one-year anniversary of when we found out that Taylor was profoundly deaf.  I look back on the past year with amazement of the journey that our family has been on.  From sorrow, grief and guilt to joy, gratitude, and determination, we have experienced it all this year. 

How can you not love this kid?  Streaking around the house naked and busting into a bag of Daylight Donuts, she is so full of life, energy, enthusiasm, intelligence and affection, I am nothing but thankful for getting to be her mom. 

Next word -- DONUTS!

K Week

Taylor is doing really well.  She had a great time with the grandparents.  She is talking more and more.  At 8 months post-activation, her receptive language is solidly in the 18 to 21 months range, with some skills in the 21 to 24 month range.   In terms of speech, she is falling in the 18 to 21 month range.  This is wonderful with only 8.5 months of listening age.

This is the link for last week's G lesson.

http://www.cochlearamericas.com/PDFs/Speech_Sounds_G_Plosive.pdf

For the current week, we are doing K.  Taylor loves kitties!  They are her favorite animal.  We are going to try to focus on helping her learn verbs.  Right now, she uses many nouns, but the only real verb she says is Go.  We are going to try to expand that list, and hopefully using kitties in some role play with help us keep her engaged.

http://www.cochlearamericas.com/PDFs/Speech_Sounds_K_Plosive.pdf

G is for Grandparents!

This week, we've been working on G's! Derek and Taylor are staying with two sets of grandparents this weekend.  They are geared up and ready to go!


I found this on another blog and thought it was great for Mother's Day.


HERE’S TO THE MOMS

Here’s to the Moms who may not have “signed up” to parent a deaf or hard of hearing child, but do so anyway with grace and love.

Here’s to the Moms who narrate every second of every day, not caring what others may think.

Here’s to the Moms who put miles on their cars driving back and forth to countless therapy sessions, doctor’s appointments, hearing aid fittings, cochlear implant mappings, and more.

Here’s to the Moms who work hard to be their child’s best advocate and primary language role model.

Here’s to the Moms who have had to learn a new language too fast full of Auditory Verbal/Auditory Oral terms and audiological jargon.

Here’s to the Moms who face the “experts” and fight for their child’s best interest in IFSP/IEP meetings and in those meetings where you are just trying to make the system better.

Here’s to the Moms who can wrestle two CIs or HAs onto a squirming toddler… and replace it 20-40 times each day, even in the car, without loosing their cool.

Here’s to the Moms who can cook dinner, answer the phone, and change a CI/HA battery without breaking a sweat.

Here’s to the Moms who constantly have to explain their child’s “equipment” and answer the question "are those forever?"

Here’s to the Moms who have ever felt the pain of having a child who is “different”.

Here’s to the Moms who never take a single word for granted.

Here’s to the Moms who never fail to astound me with their capacity to persevere… and to love.

F Week, Flu, and Fun

We have focused on F words for the two weeks.  We've also been a sick house for the past 9 days.  We missed Taylor's therapy appointment this week.  Both kids have been sick and running fevers off and on.  They have pretty bad coughs and no appetite.  We're pretty sure it's the influenza, but keeping in the spirit of F words, the FLU.  Taylor's fever got up to 101 degrees at one point.  With all that she's gone through, this is the first time she's been sick other than a mild cold with runny nose. 

Even with the illness, Taylor has said so many new things. 

Puppy

Ut oh

Okay?  ...she asked of Derek after he fell down.

Thank You

Derek!

Sleep

Choo (as she saw a train)

Where'd it go?

Yuck

Bird

Binky

Drink

It seems like she is adding multiple new words every day and it's harder for us to keep track.  That's a good problem to have!  Today, we are 8 months post-activation.  Happy Mother's Day!

M Week and Life Lessons

We spent two weeks on M week. What can I say? Lots of important M words... Of course, Mama is at the top of the list. I will remember every day for the rest of my life that was the first sound that Taylor made that sounded anything like a word - Mama - at 4 weeks post-activation. Now, Taylor knows who her Mama is without question. She has perfected saying "Mama" for several months now. She has a beautiful "Meow", which she does as she follows our cat Mikea around the house. She can say Mikea, but it more often comes out as the Kay-ah part. She also tries to call our dog, Maverick. She'll pat herself on the leg and go "Mav, Mav." At our last therapy appointment, she cracked up Daddy and the therapist by saying "Oh My Gosh."


She helped Daddy mow the yard. I can't believe she tolerates riding on the mower with her "ears" on, but I guess it doesn't bother her. Last week, my husband took her to the grocery store and she said "hi" to everyone she saw. Several people said hi back. It's amazing... you just want to say -- hello, my deaf daughter just said hi to you. and she's not even two yet! It is so cool to witness her truly enjoying her own ability to communicate.


There are some times as a parent when it is really nice that she can communicate verbally. It is still weird to me, but Taylor makes the same sounds and words now with and without her ears on. Sometimes, she talks to herself quite a bit and we can listen to her through the baby monitor without her realizing it. Last weekend, we put her down for her nap around 2:30... didn't want it to be much later and have her up until 10 p.m. She just wouldn't give it up and fall asleep though. We were puzzled until I heard her go "Eeewwww. Peee Youuuu. Eeewwww." I looked at her Dad and said "she's poopy." Sure enough, I run up there -- Poop up her back, on her sheets, blankets and bumpy. I'm just glad she hadn't gotten to the point of sticking her hands in it and wiping it on something else. And so it goes...


I always have to throw in a little story on Derek too. He's the 3-year-old ruler of the universe, if you ask him. As of two weeks ago, Derek is a champion pooper on the toilet, after 10 months of #1 on the toilet, and no #2, we have total success!


We were taking the kids out and about one evening and offered to go to a park close to home. The other option was to go Home. Derek says "well, I don't like my choices!" He's THREE! Welcome to the real world. One life lesson down, one million to go.


He is so funny... a great big brother in some many ways. I hope Taylor keeps learning from him, just not quite in every way.

Oh SH!

This week, we did SH!  Lots of Shhhh!  
For starters, Derek stepped in a big pile of this bull mastiff's sh** (I mean, poop.)

We washed our hair with shampoo and applied lotion.  We put on our shirts, shoes, and shorts, and brushed our teeth.  It finally was warm enough for some shorts. 



We got to look at our shadows outside and Shake our whole bodies to the tune of Little Einsteins.  We tried to encourage sharing as we toasted marshmallows.  We took out the trash and washed the cars.




We finally finished all of Taylor's immunzations. (Don't forget that the words with "tion" are also SH words.) We still had a few 12-18 months shots left, but they are all done as of Friday. Yeah! No more until kindergarten.




We visited to local Wildlife and Parks museum to get up close and personal with some fish. Today's Sunday; maybe we can go get a milkshake later.

http://www.cochlearamericas.com/PDFs/Speech_Sounds_SH_Fricative.pdf


I have to say, there are a lot more words with SH than I ever realized.  It was a fun week.  Taylor is talking more and making more sounds all the time.  She had one great day filled with "Dada" this weekend.  Maybe D week is paying off a couple weeks later.

D Week! Hoping for More Dada's

Last week was D week at our house.  We brought out everything D, including lots of time with Daddy since it was Easter weekend.  We danced, dipped our hot dogs in ketchup, and road lots of rides at Silver Dollar City. 

Oh, yeah, another D...  We drove, and drove, and drove some more.  We drove from Kansas, to Oklahoma for a therapy appointment, and then we drove on to Missouri, then back to Kansas on Sunday.  We are thankful for the big D in our lives at these times, namely the DVD!  It helps to make the drives bearable. 

Here is the link to the Speech Sounds D week.  It is fun! 
http://www.cochlearamericas.com/PDFs/Speech_Sounds_D_Plosive.pdf

We played with dolls, talked about dirty diapers, watched the ducks, and fed the dog.  I think Taylor spent half of the weekend chasing my mom's dog.  She had a great time with him.  We have a dog who is around five years old.  My mom's dog is still a puppy, and he had the best time running from Derek and Taylor.

P WEEK

It's "P" Week at our house! 

Well, it started with the kids on Sunday before I had even announced it was "P" Week.  
Taylor is really good at fighting while getting her diaper changed, and a poopy diaper fight resulted in my getting a poopy bottom flipping over in my face and getting poop smeared on my chin.  As I'm finishing the cleanup from that, Derek wants me to assist him in the bathroom because he has decided to start peeing standing up, rather than sitting, and has peed all over the seat and floor.  I had rushed away from Taylor before getting a fresh diaper on her, and when I came back to her, she had peed on my bed.  Later that day, Derek peed on the floor in the bathroom two more times while trying to figure out how to pee standing.  Why he decided to start it on that day when his dad was at work is beyond me.  And this was all in one afternoon.

The next day, we annouced it was "P" Week.  The Cochlear website has some really helpful educational materials, including Speech Sounds.  Please see the attached link: 

http://www.cochlearamericas.com/Support/2294.asp


It has a weekly/bi-weekly instruction guide for various consonants, complete with associated activities, words, books, songs, foods, etc.  It is great!  We are going to cover a consonant per week.  It is working double-duty for both Taylor and Derek (age 3). 

As I said, this is P week.  Our dog Maverick celebrated on Monday by eating a mouse/rat/baby rabbit and then PUKING in our house.  The P's continue...

On Tuesday, Derek started at Pre-school.  He was terrified when getting dropped off, but perfectly happy about preschool when I picked him up. 

So far this week, we have

 Popped bubbles

Ate pizza, pineapple, and peanut butter

Napped!

Peeled carrots

Listened to a purple piccolo dinosaur on Little Einstein's

Hopped like a frog

Poured Sand

Ate Spaghetti

Wiped Up

Patted and clapped to music

Played with a Purse

and experienced Pee, Puke, and Poop.

We are loving P week and all of the language learning opportunities and ideas that it is giving us.  Check it out!  19 weeks to go!

Bling It! and More Words

Taylor is a girly-girl! We like to decorate her headbands and CI covers to go with her outfits. We have quite a collection of headbands now, and have 4 sets of the CI covers so far. See the "Hoorah for Headbands" blog for more information on the headbands.

Taylor is talking more. She is saying a lot of words on her own without my prompting, and then her repeating.

Our neighbors got a new kitten, and she said "Baby Kitty."

Derek was going potty and she said "Pee pee."

Daddy got home and she said "ya-ya". Sometimes we have heard her say "Dada", but more often it still comes out "ya-ya".

She can point to her eye and say "eyes."

We have a mapping appointment this week. It has been about 3 months since the last mapping. We're hoping for even better results after this appointment.

This week, Grandma and Grandpa were here. Grandma asked Derek to do something, and he said "Noooo!" Then Taylor helped the cause by adding her "NNNNooooo!" My mom thought this was pretty funny. We have Skyped with them, but they hadn't seen Derek and Taylor since early January. They were impressed by her progress.

On the blog design, I had to take off the side posting about Words Taylor Knows; it got too long months ago so I gave up on tracking that one. I am still tracking Words Taylor Says. I know that she does say more words than this, but I try to remember as many as possible. She is starting to add more words daily.