Monday, May 20, 2013

Taylor - Kindergarten IEP and Spring Sports

Hi From Taylor!
We have recently completed Taylor's kindergarten roundup screening.  She did amazingly well, scoring 99th percentile combined score.  I have to say this was one of those moments where I wanted to go back to my former self, who was so worried in the year following Taylor's profound diagnosis, and tell myself not to worry, that someday things would be great...  It's hard to believe how far she has come since June 2009 when she was diagnosed, or activated at age 15 months.  Thankfully I am able to use my perspective of Taylor's progress to allow me to enjoy Lauren's natural language acquisition with her bilateral CI's and not ruin the joy of parenting this wonderful child with the worry that we had when Taylor was young.

The IEP meeting for her kindergarten year was a meeting that I was anxious about because of her performance in the screening.  In spite of the high score, we were able to keep the IEP and continue to have Hearing Impaired Educator services and some access to the Audiologist.  The HI teacher will work with her on listening and advocacy skills.  We will have an FM system to use in the classrooms.  We are so fortunate that there are soundfield speaker systems in every classroom in our elementary school and the teachers are already used to wearing a microphone.  We are so glad to have Derek's current teacher as Taylor's teacher for the coming year.  That is a comfort to us since we have already developed a good relationship with her over the past 9 months.  We know there may be challenges to come but we are really feeling good about Taylor's kindergarten setup for next year.

Taylor continues to be a daredevil and a very physical little girl.  Here are some recent pictures.

Marco Island, FL Parasailing - Here's Jon with Derek (age 6) and Taylor (age 4).
  Taylor went parasailing on our spring break trip, and actually wore her ears during it.  We did the waterproof bag, clipped the bag to her hair, and put the swim cap on.  She was able to hear and talk the whole time!  They saw dolphins and a sea turtle from up there (300 feet at the highest).




We have completed spring soccer with Taylor scoring up to 3 goals in her games.  Her team was a great little group that we had played with in the fall too.  T-ball is now starting; we haven't quite figured out the ears for t-ball yet.  I'm thinking we will get her own helmet and then try to do the swimcap under it to secure the ears in place.  ??  Any advice on this?


Taylor and Lauren at the YMCA Tumbling Room
Taylor just finished her dance recital for the year.  There's nothing cuter than 4 and 5-year old girls in their dance costumes!
Dance Recital
I continue to be thankful for the bond that my girls have because they both need "ears" to hear.  I hope they are able to bring strength and advice to each other in the years to come.  There is such a bond between them already.  The other night, Taylor was crying after her bath, not wanting to get dressed and ran to her room.  Lauren picked up Taylor's ears and carried them upstairs to her.  :)

Sisters









3 comments:

  1. Reading about your daughter's amazing growth is so helpful for Moms like me who are just starting the CI process. Congrats to her and to you!

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  2. I have enjoyed your blogs, it's been a while since i've got to read it. You were such a comfort and encouragement to me without even knowing it!! If you find a solution to the CI's and baseball my little man is wanting to do t-ball this year and I haven't figured out the helmet yet.

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