Day 2: We were warned that the most difficult part of transitioning to wearing a CI is putting it on each morning, to go from complete silence to the loud world of sound. I put the CI on her when she first woke up on Thursday morning, and she cried and fussed for about 30 minutes before settling into wearing it. She wasn't trying to take it off; I think she was freaked out by those "sounds" being there again... like maybe the day before was some weird dream.
I have been buying random headbands, hats and even a shirt (http://www.hearingpocket.com/) that I thought we might be able to use for keeping the CI's on her head. I bought a set of four women's Goody elastic headbands at my local grocery store, and they seem to be working well. The fact that she is leaving the CI's and headbands on really says it all. We can't even get her to hold still for a diaper change. Changing her clothes is like wrestling a greased pig. But with all that, she is keeping the headband on. All day long. It really only came off when she was playing or wrestling with Derek.
We could see the exhaustion on her face as the day wore on. By 11 a.m., she was napping and slept about 90 minutes. We had the activation for the right side on Thursday afternoon. During this activation, Taylor got a little upset when the device was being tested, but other than that, she was great. We went home with two little CI's on her head. :) She slept almost 2 hours in the car driving back to Kansas. Learning to listen is a lot of work.
Day 3 - First Day with Two Ears Again this morning Taylor went through a short time of being upset when we first got the CI's turned on. She left them alone, but wanted to be held and comforted by me for a while. She started showing signs of a lot of excitement today. The look on her face was like "I am in a whole new world and I like it!" She had a good nap, but was still getting mentally exhausted by early evening. Her brain is working so hard to figure it all out -- wind, crickets, lawnmowers, Derek saying "mine" and "No, Taylor", etc. He says "No, Taylor" so often that I am afraid she will think that is her name.
Days 4 and 5 Taylor is having fun with this. She looks up right away when I say her name or just speak in general. She has figured out that our cat meows and thinks it is hilarious. She knows that our dog's bark is really loud and thinks this too is so funny. I have enjoyed playing old games with her, now that she can appreciate the sound portion as well. We played Peek-a-boo, and she made me laugh by covering her face/eyes when I did and then uncovering them when I said Peek-a-boo. She was waiting to hear me, before she would move her hands. So cool. Our family has learned several signs in the past few months, and now I am using those in conjunction with speaking the world in the hopes that it will help her recognize words. It is going to be fun to see how she picks it all up. We are so thankful that cochlear implants exist.
BLING! We have been having fun decorating her "Ears." Today she had pink and purple headbands, with pink "ears". The right one was accesorized with a purple cover, to coordinate (serving a dual-purpose as we have to keep right and left sides separate.)
Oh Melinda, I cried when I saw that video. I am so extremely happy for your whole family. How awesome it must be for Taylor to hear. SO amazing. I can't wait to read more as the days go by. Congratulations. What an exciting time. All our love.
ReplyDeleteThe Kunz Family.
Hi Melinda,
ReplyDeleteI am so happy to Taylor, she is doing great! It is normal to be exhausted now. I used to give Luca some breaks when he seemed too tired and everyday he would want to have them a bit longer until he would just wear them all day long. It is a long journey that you have ahead of you but an exciting one, it will be so great when she starts learning about new sounds, and soon new words...I am very happy for all of you. Please give me a call if you need to talk, I am more than happy to share all I know!
Hi Melinda,
ReplyDeleteWhat a story Taylor has!! I also live in Pratt. I lost my hearing starting in Oct. of 08 then completely in Jan. They did an ABR on me and showed no reponse either. My Dr. in Wichita finally decided on CI's in March. I am finally having my surgery a week from today!! I am 42 yrs old with twin daughters that are 8 soon to be 9 in November. I also have an adult daughter who is 20 and lives in Wichita. Going from having my hearing for my entire life to profoundly deaf has been quite a change for me and my entire family. I am having one implant and am going with advanced bionics. Insurance would not pay for 2. Taylor's story is inspiring. It gives me hope. I can't wait to hear the sound of my girls' voices again! Thank you for sharing her journey and I will be following her!!
God Bless.....Michelle Strobel
Melinda,
ReplyDeleteI'm so glad I can keep up with you and Taylor's CI journey this way! It is a great way to keep in touch with family and feel connected even though I am far away. It seems that Taylor has already begun to recognize her name and certain sounds- it's amazing how quickly young children learn language just by hearing! A whole new world has opened up for her. I love the "bling" and the headbands- so cute and stylish! I wish you and your family the best on this journey and will keep you all in my prayers.
Love,
Julie
Melinda,
ReplyDeleteThanks for working so hard to educate others. You are a real advocate for Taylor and families that are going though a similar battle. Love you like a sis.
Jen
To Michelle - I really hope the surgery has gone well. I would love to hear how you are doing!
ReplyDelete