This is story of our daughters Taylor and Lauren, both with profound hearing loss, and the journey of getting and utilizing cochlear implants. Both have congenital deafness due to the Connexin 26 gene mutation.
Sunday, September 20, 2009
It's the Little Things
We had another mapping session on 9/16 where she got turned up a little with 2 new programs. She did great in the mapping session, definitely showing intelligence and tolerance to stimulation. She has been wearing her CIs without much fuss, besides in the morning when first putting them on. I liken it to the alarm clock in the morning. It always seems so loud when it comes on when you're used to silence all night. We slowly turn her up as the day goes on.
Taylor has now been "turned on" to the world for 11 days. She has shown us some little reactions to sound that normally we would take for granted. But for me, these little reactions have meant everything. When Derek was born, he failed his newborn hearing test. Being the paranoid father, I would occasionally make a squeaking noise to check his reaction. He would always squint his eyes or blink to the sound. After Taylor failed her newborn hearing test, I would do the same thing but never got a reaction. This past week, I have made that noise a few times. Each time she blinks in response to the noise. She also does it when a door shuts or she drops her sippy cup on the floor (which she now thinks is hilarious and does it all the time). Seeing her blink in response to noise may not seem like a lot, but it's all I wanted her to do when she was younger and never did. We now are getting an opportunity to watch her learn noises like a newborn. It is an incredible feeling.
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aw so cool! I am so glad she is getting to experience this now! :-)
ReplyDeleteJohn and I love watching Taylor's journey!
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