Wednesday, October 14, 2009

Hoorah for Headbands

A frequent conversation among parents of little ones with cochlear implants -- How are you keeping them on your little roly-poly, wrestling, climbing toddler?
I originally started out with some Goodie elastic women's headbands. They were working great, but you needed two, one to hold each CI. And they were elastic, so sometimes Taylor would pull on them and end up snapping herself in the face, like a rubberband. Not good.
We go to a parent's group of deaf/hard of hearing kids in Wichita. There, I met another mom of a little girl with bilateral CI's. Her grandma had sewn her a headband with loops to hold the CI processor on. It works so well and looks great! The super sewing grandma hooked me up and offered to make some for Taylor. So far, we have light pink and dark pink, with others on the way. Mom, Dad, and the babysitters are thrilled! These pictures were taken while I was making some pies and whipped cream (on Taylor's mouth) last weekend.
(If you want a headband for your child, I can give you her contact information.) I love it so much, even if I had a boy, he'd be wearing it as a sweatband... maybe with a fake Nike swoosh or some kind of sporty decoration. It makes life with CI's and a 1-year old that much easier.

34 comments:

  1. wow! those are great! What a nice lady to make those for you!

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  2. Hello, I am an AVT therapist at Hearts for Hearing. I occasionally search google for avt sites and yours came up in the wee hours of the morning. What a blessing for your family and what a wonderful blog!

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  3. I love headbands for babies with CIs. We are currently using velcro dots on the processors and on the headbands. It works well, but I like your idea better. I would love the contact information for the grandma that sews these. My email is mommytolily@gmail.com. Thanks.

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  4. I loved the pictures of Taylor cooking with you. They sure made me smile and I could only imagine all of the wonderful words you were pouring into her at the same time you were pouring things into your recipe. What beautiful happy kids you have and how lucky they are to have you as their mommy and daddy. Thanks for sharing the journey.....

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  5. I came to your site through Loving Lily and I loved these headbands.I also wear headbands a lot and I'm an adult , so I'd like to have something to help me wear CI a little better as I have small ears and lose it a lot plus the weight is really bugging me.Maybe you can email me at vivie.eudo3ia@gmail.com ( I live in Greece sadly )

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  6. can you please give me her contact information. I have a 6 year old boy, and I would love a sweat band when he's playing soccer. You can email me at jtrosey@sbcglobal.net. Thanks.

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  7. Any other websites for cochlear implant decals etc.

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  8. My 10-month-old granddaughter is on track for CI surgery in February 2010. She wears hearing aids now and headbands. I would love to get her started on these fabulous CI holding headbands. Can you pass my e-mail along to the Grandma who makes them? familymcgpa33@comcast.net. Thanks so much for you blog and all the insight.

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  9. Kaziaur at gmail dot com. I'd love some of those for my children!

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  10. sddockre at yahoo dot com... these are fabulous!

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  11. Hi there! Just another Mom interested in the headbands. Could I get the information? shandrareiswig@clearwire.net

    Taylor is a doll! So photogenic too :) My 1yr old Brinley gets her CI's Feb 26th. Can't wait. Taylor's progress gives me hope <3

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  12. Hi. I have been searching for headbands to help hold hearing aids. Wonder if your friend could adapt the headband for me? Would you send me her contact info? My email is jmdrez at comcast dot net.

    By the way, my son is 6 and has bilateral implants. He has not missed a thing and is doing great! All the best is ahead for your daughter.

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  13. Hi, My 18 mo. old grandson will be getting his bilateral cochlears in the near future. I am very interested in the headbands for him. I would so appreciate it if you would pass my email address to this fabulous Grandma:
    sconsola@hotmail.com
    Thanks so much

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  14. Hi, I have been searching headbands for my daughter who is 17 months and did got cochlear 2 months ago and while reading your blog I got lot of inspiration from you guys.
    Please if you can also provide me the contact information of this fabulous grandma my email is amritmanes@yahoo.com.
    Thank you so much

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  15. Thank you for sharing your experiences and fun tips about CI wearing. Our 12 month old was turned on today. We were given a copy of pictures of Taylor wearing the headband with your blog site address on it. We would love to get more information about the headbands. Will you please pass on my contact information it would be greatly appreciated. Best wishes to you and your family.
    I can be reached at lori.ginter@gmail.com or 480-415-0409

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  16. I would love the contact information for the women that made the headbands...or some tips to make them on my own.

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  17. bjgibson@cox.net -- Headband contact

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  18. Hi, I have one 3 year old who is implanted and a 8 month old who will be getting an implant. My three year old is doing fabulous with her implant, most people wouldn't even know she is deaf...her speech is clear...she is talking so much using full sentences etc. The implant truly is a blessing! I would love the contact for the headbands...thank you hafpt74@comcast.net

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  19. Can I get the e-mail for these headbands? I would love some. My daughter that is 10 months just got activated and we are needing help keeping them on. I love these!

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  20. ps.. my e-mail is melissajlarson@mac.com

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  21. Just another mom in DESPERATE need of a headband for my 4 year old boy with bilateral implants that also has CP. As you can imagine he is contantly on the ground rolling all over the place. My email is tabethalorance@yahoo.com
    Thanks

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  22. I would love the contact for the headbands too :) My email is stephaniestakenas@yahoo.com My Daughter was implanted on ST PATTY's Day this year - we are 3 days out from surgery. One of my worst fears is not being able to keep the processors on - I want to order some bands before her activation on April 14th! Thanks so much :)

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  23. My daughter just hadd her CI surgery on the 15th and we are wanting the headbands to prevent her tiny ears from bending... she is only 20 months old. My emails is mbrown@sasktel.net any information would be great! Thanks so much for your blog and any info...reading your blog has been very supportive for me and my husband as we travel down the same journey for our daughter to hear.

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  24. Hello, I am interested in the contact for those adorable headbands as well! My email address is jennifer.a.kramer@gmail.com. My daughter is 7 months old and scheduled for her surgery 2 weeks from today - yikes! Thank you so much for sharing your journey, it has been very inspiring.

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  25. can I get contact information for the headbands please?? Your daughter is adorable! My daughter is 12 months old and should received bilateral CIs in March or April. My email is danagnt@yahoo.com.
    Thank you so much!!
    Dana

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  26. My 9 month old just had her "new ears" turned on, on Monday this week and already I'm looking for a solution to keep them on. Can you please send me hew email address to nparoissien@yahoo.com.au
    Cheers
    Nic

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  27. These headbands look great! Could you send me her contact information? My email is pattyhs13@comcast.net

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  28. Hi there! My son is a bilateral CI patient, and seeing your blog, I would love the contact information about the headbands! Pls email any information to shywoobie_22@yahoo.com....thank you so much!

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  29. My son has bilateral implants and I would love to get him something like this. Could you please pass my email to her: becky0006@yahoo.com
    Thanks so much!

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  30. I am looking to get BANDS for my daughters CI can you send me an Email with info.... Toeknee1205@aol.com Thanks Toni!

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  31. My Grandbaby just got her CI activated and I am so interested in getting some of these bands. could you please email me information on how to order some, jackie.canon1963@gmail.com Thank you very much

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  32. If you're still checking this, I'd love contact information for my baby getting implants next week. Thank you! saradoutre @ gmail.com

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  33. Hi, I would love to get those headbands for my 16 months old boy. My id is diona.david@gmail.com

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  34. Hi Melinda
    Thank you for sharing your blog with us. I am interested in getting the Grandma's contact to get a headband made thanks.

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